ENROLLED
Senate Bill No. 112
(By Senators Prezioso, Sharpe, Hunter, Foster, Unger, Jenkins, Plymale,
Helmick, Dempsey, White, Fanning, Sprouse, Deem, Yoder, Facemyer, Love,
Bowman and Minard)
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[Passed March 11, 2006; in effect ninety days from passage.]
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AN ACT to amend the Code of West Virginia, 1931, as amended, by
adding thereto a new section, designated §16-5R-7, relating to
establishing an Alzheimer's Disease Registry within West
Virginia University to act as a central information database
for policy and planning relative to Alzheimer's disease.
Be it enacted by the Legislature of West Virginia:
That the Code of West Virginia, 1931, as amended, be amended
by adding thereto a new section, designated §16-5R-7, to read as
follows:
ARTICLE 5R. THE ALZHEIMER'S SPECIAL CARE STANDARDS ACT.
§16-5R-7. Establishment of a central registry.
(a) To the extent funds are available, the Governing Board of
the West Virginia University shall establish an Alzheimer's Disease Registry to collect information concerning alzheimer's disease and
related disorders. The purpose of the registry shall be to provide
a central database of information to assist in the development of
public policy and planning. The information collected by the
registry shall be analyzed to prepare reports and perform studies
as necessary when such data identifies information useful in
developing policy.
(b) All reporting sources, including hospitals, physicians,
facilities, clinics or other similar units diagnosing or providing
treatment or care for alzheimer's disease and related disorders,
shall provide a report of each case to the Alzheimer's Disease
Registry in the format specified.
(c) All information reported pursuant to this section is
confidential and shall be used only for the purposes set forth
herein. A report provided to the Alzheimer's Disease Registry that
discloses the identity of the individual being treated shall only
be released in accordance with the provisions of the Health
Insurance Portability and Accountability Act of 1996. No liability
of any kind or character for damages or other relief shall arise or
be enforced against any reporting source by reason of having
provided the information or material to the Alzheimer's Disease
Registry.
(d) The governing board shall propose rules pursuant to the
provisions of article three, chapter twenty-nine-a of this code to
implement this section. The rules shall include, but not be limited to: (1) The content and design of all forms and reports
required by this section; (2) the type of information to be
collected and maintained; (3) the procedures for disclosure of
nonidentifying data to other appropriate research entities; (4)the
manner in which reporting entities or individuals, including
families, may be contacted by the registry for additional relevant
information; and (5) any other matter necessary to the
administration of this section.